Jayetta hecker biography of rory gilmore

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Jennifer will share real examples of how she uses AI to…

Free

Join Jennifer Bloom, parent, caregiver, and advocate, for a practical and encouraging session on how AI tools can help lighten the mental load. This session is…

Join us Monday November 17 at 8pm EST as we chat about navigating the holidays with our medically complex kids.

She brings a wide range of policy, evaluation, and communications skills as well as added urgency and passion to advocating for improved epilepsy outcomes for all. With her daughter, she has built an array of innovative and efficient mechanisms for accelerating the science and better treatments for not only her grandson’s disorder, but for all rare and catastrophic epilepsies including the International SCN8A Alliance, DEE-P Connections, and The Inchstone Project.

JayEtta Hecker, M.S.

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Co-Founder and Board President Developmental and Epileptic Encephalopathy Project (DEE-P Connections)

JayEtta grandmother to Elliott who struggles with one of the most severe rare genetic epilepsies. An economist by training, she served in diverse federal positions, directing program and policy evaluation over a 44-year career including 25 years with GAO, and 19 years in various executive branch agencies, culminating in a year working in the Carter White House.

Pediatric gastroenterologist Dr. Sherief Mansi will review feeding and stooling challenges, common testing, and clinical options such as tube feeding, stomas, and TPN. Two parents with lived experience will also share practical insights from their own journeys.

jayetta hecker biography of rory gilmore

We will be sharing gift ideas, how to create memories, joining family/friends for gatherings, and navigating all the big feelings this season brings!

Caring for a medically complex child means juggling endless details, from therapy notes and appointments to insurance paperwork and care coordination.

Jayetta hecker biography of rory gilmore

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JayEtta Hecker, M.S.